About Paisley

Well, I guess I will write quick note about Paisley to answer any question that some people have about what has been going on with her lately. She was not eating well and we thought something was wrong but our pediatrician here in Moscow was not listening to us. So when Brooke went to Idaho Falls at the beginning of may she saw Dr. Groberg and he noticed a few things that were quite concerning to him and he thought that she might have some type of neuro-muscular disorder because she lacked the suck/swallow and gag reflexes. She also lacked muscle tone in her face and he was afraid that she would asperate, so he inserted an NJ feeding tube through her nose. He then informed us that we had to go to Primary Children's Hospital in SLC...so we were there for a week and she had all kinds of tests (MRI/EMG/etc.) She was also seen by all kinds of specialists and occupational therapists. they were able to rule out a few things, but were ultimately unable to diagnosis the exact problem that she has. They did change her feeding tube to an NG and have talked about eventually moving it to a G-tube (meaning that it won't go through her nose, but straight into her stomach) since she is likely to need the tube for the next 6-8 months. We are scheduled for a muscle biopsy and regular check-ups in Idaho Falls and at Primary Children's.

She is actually doing quite well, but we are taking particular care of here to make sure she continues to improve. Thank you for all the prayers and support that people have given in our behalf. I am also grateful for all those kind friends that offored to pick me up at the airport when I needed a ride and for all meals and phone calls we have recieved. Our family has been very blessed and we are confident that this is all part of our Heavenly Father's Plan for our family and it has truly been a blessing to us. I was especially touched by the sacrament meeting that I attended while at the Hospital and I realized that there are many other families that are hurting alot worse than we were. But I was also amazed to see their positive attitudes and the strength of their testimonies at a time that obviously very difficult for them. I know that the Lord watches out for his children and that when we experience trials and difficulties it is only to help us develop into the quality of person that the Lord would have us become. And I think that means that sometimes in order to achieve that purpose, we must suffer ourselves or endure the suffering of our children...but either way, it is a blessing from our Heavenly Father because he loves us.

We don't have any pictures yet, but we will update within the next few weeks.